MAGGIE - MY NURSE

1 DAY TO DBS

This will be my last blog until sometime after the operation because I won’t have access to my lap top. I could probably do it on my phone but I’m not that clever!

I didn’t have a good night knowing I was going in to hospital today and when I did sleep Parky was wanting a scrap, I tried to walk away but he was having none of it.

He did me a favour though because when I woke at 6.30am aching and in pain I knew my decision to go ahead with this operation was the right one.

 

There is a group of very special people I haven’t mentioned up to now. They are the Parkinson’s Nurses. We have all heard of Macmillan Nurses who do a brilliant job caring for people with cancer but Parkinson’s nurses don’t get any publicity so I want to talk about them.

 

I apologise because I can’t remember the date when I first met my nurse but I will never forget how lovely, caring, compassionate, knowledgeable and sensitive she was towards me, my wife Kaye and my condition.

Her name was Maggie Johnson, who I have now known for a number of years. The day we met she visited our home which was a lot more relaxed than going to a hospital or clinic. I think she spent a couple of hours with us talking about the condition, how we both felt, how the children was about it and all the other related issues medication, treatments and the future.

What I found really special was the focus on how my wife and children was in dealing and accepting the condition. People forget that your immediate family is affected almost as much as you and it is vitally important they are involved and informed. Maggie did this so well, I’ll never forget how at ease I felt when she said “It’s not all about you Rob”

 

This was the start of a fantastic relationship with a true professional who knows her job, is always there for us and someone I feel I can talk to about everything. Even when I had gone through my marriage break up and she met Maxine for the first time she was never judgemental and has become very good friends with Max.

As I said Maggie (and I’m sure all the Parkinson’s nurses) are very professional and caring but I got a very special one!

My life with Parkinson’s would have been very different and difficult without this lovely lady and like all the nurses in this world, they are “Angels” who do a wonderful job with little recognition.

 

SEE YOU AFTER

 

Don’t forget Tuesday evening NOBBY !!!