MY BLOG HELPS JEANNETTE

6 Days to DBS – I feel a couple of Blogs today you lucky people!

 

Well, this time next week it will all be over, my operation that is!

 

Today has started as it did yesterday, awake at 4.30am again!! At this rate I won’t need a general anaesthetic next Tuesday, I’ll be that knackered I think I’ll sleep through the 7 hour operation!

 

I am desperately waiting and hoping for the letter from the QE Hospital confirming everything. I know this is one reason for my sleep deprivation. There is always a chance with the Neurological Brain surgery team something could happen, as in priorities and my date gets moved. I really hope not I couldn’t go through this again!

 

Anyway tablets taken at 5am, cups of tea and coffee and fags done and 25 minutes of off time passed. I’m operating as normal again.

I mentioned yesterday about taking Paracetamol & Ibuprofen and I said I would explain why I take these some mornings. Normally I sleep quite well and deep but Parky does play a nasty role during the night on occasions.

I am lucky because I sleep through it but we occasionally have a serious fight where he attacks my limbs and muscles pounding me. To defend this I twist, turn, tense up and only realise how much he has hurt me when I attempt to get out of bed and this is when I need the pain killers.

People with Parky’s will also recognise a night with a continental quilt that feels like it weighs a ton!

 

7.15am Starting to struggle, arm has gone limp and face has gone! Waited until7.30 took tablet. Bad off time 45 minutes before able to move arm comfortably!

 

I went on FB and looked to see how yesterday’s blog had been received. There were lots of likes, shares and comments and a particularly poignant comment that I have to share.

Jeannette is a lovely lady I used to work with. I knew she was following my blog but when I saw this, I was overwhelmed that my blog had impacted on her like this!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

10am Here we go again. Typing away hand just stopped,  tongue and bottom lip dropped!! So frustrating, time for a drink and a cig. Not that bad 20 minutes off time.

 

You may be wondering what I mean by OFF time. For people with Parky’s and the medical staff, doctors, nurses etc. OFF time is when the condition is effecting you in whatever way you suffer, stiffness, numbness, shaking, dyskenesia, freezing etc.

Your ON time is when medication has kicked in and your feeling okay